EHR & Health Data Systems · Health Data Network / HIE (Federal Framework) · Structural / no discrete incident
TEFCA / QHINs (federal framework)
Headline
TEFCA is the federal government's framework for nationwide health-record exchange.
Not independently verified. Verification status: Unverified - heuristic first draft. Publish state: draft unverified.
TEFCA is the federal government's framework for nationwide health-record exchange. Ten designated QHINs connect to one another under a single Common Agreement: CommonWell, eClinicalWorks, eHealth Exchange, Epic Nexus, Health Gorilla, KONZA, Medallies, Netsmart, Oracle Health and Surescripts. One of its permitted purposes is 'Individual Access Services': a consumer app can query the national networks for your records at your request. The catch is that HHS says once records are sent to an app you chose, and that app isn't a HIPAA covered entity or business associate, the records are 'no longer subject to the protections of the HIPAA Rules.' TEFCA's procedures put their own privacy, consent and incident-notice requirements on IAS providers instead. Those are contract terms enforced through the network, not federal law, and individuals can't enforce them directly. TEFCA's founding principles are explicitly 'non-binding.'
- Severity
- Evidence tierUnassigned
- Claims confirmed
- Last verified2026-10-15
Primary source. www.healthit.gov/topic/interoperability/policy/trusted-exchange-framework-and-common-agreement-tefca — Unverified - heuristic first draft.
Terms
Arbitration
Not applicable (framework). Check each IAS app's own terms.
Data sharing
National query-based exchange of clinical records among QHINs and their participants. The IAS purpose lets consumer-facing apps pull records. Once records reach a non-HIPAA app, HIPAA no longer applies (HHS). The protections that remain are TEFCA contract terms and, for apps, FTC and state law.
Fees and billing
No consumer-facing fee is set by the framework. Common Agreement v2.1 s.18 sets network-level fees only: QHINs pay the RCE fees (Schedule 1), may not charge other QHINs for exchange, and responding nodes may charge initiating nodes fees as defined in an applicable SOP; QHINs may also charge their own participants. Fees charged to consumers by individual IAS apps were not found.
Contacts
Privacy contact. rce@sequoiaproject.org
Legal notice. Not applicable (federal framework). RCE contact: rce@sequoiaproject.org
Mailing address. Not recorded.
Evidence
No claims have been itemized for this row yet.
Sources
| Source | Claim | Tier | Status | Quote |
|---|---|---|---|---|
| Regulator (ONC/ASTP) · 2026-09-03 www.healthit.gov/topic/interoperability/policy/trusted-exchange-framework-and-common-agreement-tefca | whole row | Unassigned | confirmed | “TEFCA is designed to support exchange for any purpose, but that purpose must be indicated in each request for data.” Quote basis: not recorded. |
| TEFCA RCE · 2026 rce.sequoiaproject.org/designated-qhins/ | whole row | Unassigned | confirmed | “this list may change as new applicants are accepted as a Designated QHIN” Quote basis: not recorded. |
| TEFCA RCE · 2026 rce.sequoiaproject.org/common-agreement/ | whole row | Unassigned | confirmed | “protection of privacy and security of individually identifiable information” Quote basis: not recorded. |
| Regulator (ONC) framework document · 2022-01 www.healthit.gov/sites/default/files/page/2022-01/Trusted_Exchange_Framework_0122.pdf | whole row | Unassigned | confirmed | “Privacy and security should be a foundation for all HINs and HIN participants, including those that are not subject to HIPAA.” Quote basis: not recorded. |
| Regulator (HHS OCR) guidance · 2026 www.hhs.gov/hipaa/for-professionals/privacy/guidance/access-right-health-apps-apis/index.html | whole row | Unassigned | confirmed | “is no longer subject to the protections of the HIPAA Rules” Quote basis: not recorded. |
Source vault
Link status: Candidate - not yet fetched
| Document | Last fetch | |
|---|---|---|
| Privacy policy https://sequoiaproject.org/privacy-policy/ | Not fetched yet | NOT CONFIRMED |
| Terms of service https://rce.sequoiaproject.org/wp-content/uploads/2024/11/Common-Agreement-2.1_ASTP-508.pdf | Not fetched yet | NOT CONFIRMED |
| Website https://rce.sequoiaproject.org | Not fetched yet | — |
| Primary source https://www.healthit.gov/topic/interoperability/policy/trusted-exchange-framework-and-common-agreement-tefca Verification: Unverified - heuristic first draft | Not fetched yet | — |
Enforcement
No enforcement actions are linked to this row.
State statute
No comprehensive state privacy statute on file for DC (HHS ONC/ASTP)